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Saturday, 20 December 2008 14:17

What is ROHADD?
Rapid-Onset Obesity With Hypothalamic Dysfunction, Hypoventilation, and Autonomic Dysregulation Presenting in Childhood. More info.

What is ROHADDNET?
Rapid-Onset Obesity With Hypothalamic Dysfunction, Hypoventilation, Autonomic Dysregulation and Neural Tumor Presenting in Childhood. ROHHAD with the addition of a neural crest tumor. (ie Neuroblastoma)

Is CCHS the same as ROHHAD?
CCHS is the respiratory function issues that are present in ROHHAD, but to be diagnosed as ROHHAD the patient also has the rapid onset obesity.

Is there a cure for ROHHAD?
Not, not right now. Current treatments include a permanent tracheostomy or the more recent research into a vestibular stimulator.  Additionally, the use of immunosuppressive chemotherapy is also being used but is considered experimental.

Last Updated on Tuesday, 23 December 2008 13:41
 
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